We are enjoying a nice quiet leisurely Saturday (watching football of course - Liam loves football...who knew?) before Liam's tube surgery on Monday. His cardiologist appointment Wednesday went really well, he is 12 lbs. 14 oz., 23 1/2 inches long and his oxygen still sits in the 80's at 82 which is really good. Dr.Verma is still anticipating his next heart surgery for when Liam is around 6-7 months old. That would put it sometime in April or May.
Dr. Verma did say Liam had slowed down his weight gain since last month, but is still doing well for growth. That makes sense, over Christmas we dropped off his nightime feeding because he was sleeping so well at night (I like to think the Lord is honoring us and giving us a child who sleeps through the night in lieu of his other difficulties. It is heaven.) Anyways, the G-tube will be easier to manage his feedings since Liam needs to have a certain number of calories everyday to compensate for the extra calories his heart burns. We should be able to do a continous feed all night long, to make up for what he doesn't get during the day. With a tube, it is hard to tell how full they are getting, etc. We were up to 120 ml per feeding, but Liam was not handling that very well (i.e. spitting up after he ate and getting uncomfortable towards the end of his feedings), so we had to drop him back down to 110 ml, since that seemed the most he could comfortably handle all at once.
I am really hoping the tube surgery goes as expected. I've had this fear that it is going to open up a big can of worms....hopefully other issues won't pop up because of this. One day at a time...stay tuned.
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