It was harder this time to leave Liam overnight. He is getting to be so much fun now, responding to us, laughing all the time and really showing a wonderful personality. I miss him more and more when I am away from him, even when I am at work. But I must say it was nice to get out of the house for a night.
Liam is continuing to do well with his feedings through the G-Tube. He is gaining weight right on track, weighing in at 14 lbs. 14 oz this past Thursday at his Synagis shot appointment. He has surpassed doubling his birth weight, so I am so grateful! I really think that the G-Tube has been a blessing...I know it sounds weird to think that it would be a good thing, but honestly, it has worked well to keep him growing and it is less stressful on us to not have to worry if he is eating enough.
This past Tuesday we went to our first Amazing Little Hearts support group meeting at Medical City. It is a group formed by parents of heart babies to offer encouragement, support and raise awareness for CHD's. We got to see Liam's old roomie, Tucker, and his parents Dena and Trent. We also met some really great new friends. It was really nice to feel like a normal family...everyone there knew exactly what we were going through, had some great advice, and shared stories about their experiences. We took Liam with us too, which I was a little hesitant about, but am glad we did. I don't think he had ever been around a group of people that big! (And it was only about 20 people or so!) It was also a new experience of feeding him in the car on the way in rush hour traffic...luckily he slept and the feeding machine alarm did NOT go off. That took some planning time to figure out!
Wanted to mention one last thing before I post some pictures and call it a night. DUstin and I watched a movie called "Something the Lord Made" this afternoon. It is a movie about a true story of the three doctors who developed the "BT" shunt, which saved Liam's life. It is a great movie, depicting in one scene, almost the exact scenario Dustin and I faced with Liam ...brought me to tears. If you get a chance to rent it or catch it on HBO, it is worth watching.
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