Second attempt at extubation unfortunately failed again. The removed the vent tube at around noon and Liam did great the first 30 minutes...he started relaxing and breathing well on his own pretty quickly. Then all of a sudden he slowly started de-satting and breathing harder and harder. I immediately knew something wasnt right. They tried a couple treatments to see if they could get him breathing better, but to no avail. Not sure what all went on in here between 12:30 and 1:00, before they re-inserted the tube. To be honest, I lost it and had to leave the room. My dad was here with Liam and watched everything go down. Dr. C (CHSU doctor) told us his airway started swelling and narrowing and basically closing up which was not allowing much air through. They tried a couple of inhaled steroid treatments but they didn't take like they should have. He had to put a smaller tube back down because he said the swelling was pretty bad. Now Liam is on an IV steroid to help the swelling go down which they will most likely keep him on another couple days.
I'm a little numb right now from all of this...just in disbelief that this attempt failed too. God and I just had a good long talk, and I'm pretty sure I didn't have a lot of nice things to say to Him. But then again, that what He is here for...to remove our burdens from our backs and carry them for us. Lots of things rolling through my head right now, so I think I'm gonna go take a breather. Please continue to pray for us - do not be discouraged in your prayer...they ARE helping and God is listening, just in ways we may not be able to see...yet.
Hi! I just followed you over from Baby Center after leaving you a message regarding the extubation issues.
ReplyDeleteI went through your blog and read the first few entries on your son's birth and diagnosis. We didn't learn of our son's heart defects until two weeks after he was born. Our pediatrician heard a heart murmur at his two week check up and sent us downed the hall for further testing. We too were devastated to learn that our baby was in heart failure. A few days later we met with a cardiologist and received some very upsetting news. Our precious boy has D-TGA, DORV, VSD, Pulmonary Stenosis and a Right Aortic Arch.
He has endured three open heart surgeries already and faces many more in the future.
We also have a blog at www.whenlifehandsyouabrokenheart.blogspot.com so feel free to stop by. If you need any advice or someone to chat with just give me a shout! I know how very important it is to have someone going through the same thing to talk to.
Praying for your little guy!