We have a surgery date. They actually called us last Friday (which is pretty quick knowing how long they usually take to get back with us, which adds to my urgency to get this done!). Surgery date is Wednesday, December 29. Good and bad to this, we were hoping they could get us in sooner, for peace of mind and just to get it over with, but also for insurance purposes. I hate that insurance concerns are something you have to consider, but our deductible is not cheap (as I'm sure most people's aren't in today's world), so we were hoping everything would fall under this year. We are on the waiting list if a date comes available sooner....I told them even if it's tomorrow, we'll take it!
I don't think it's really hit me yet. Parts of it have definitely started creeping into my mind of what the last surgery was like and I'm trying to stay positive and stay focused on the holiday season and joy of what Christmas means. There is also just so much going on this time of year, which is ending up being a good thing to keep my mind busy and out of places it doesn't need to go =)
My biggest concern is keeping Liam healthy the next 3 weeks. He is still on breathing treatments 2x per day, and I am thankful for that. It seems to keep him clear in his lungs and I'm glad this year he is old enough to have that type of treatment available. But with family and all coming for the holidays, it just makes me nervous....I'm in constant surrender to the Lord for this...and that ultimately His timing will prevail, no matter how much earthly planning is done =)
Liam is doing well right now. Feeding him has become a challenge! He is currently not wanting ANYTHING to do with purees, which I don't blame him. We also go through a whole container of "crunchies" everyday it seems....As long as he'll eat something I guess. I was able to get him to eat some scrambled eggs this morning. I fear a picky eater! I never thought I'd be that mom who would resort to feeding her child whatever he wanted just so he'd eat, but I think I'm there =) He is tolerating soft table foods very well it seems, so that is great news. We were planning on getting another swallow study done to see about working with the liquid side of things, but now I'm putting that off until after he has recovered from surgery. Hopefully, we can pick up where we left off.
Hope everyone is enjoying the season so far! Blessings from our family to yours!
Thanks for the update, praying for you all!
ReplyDeleteOh dear friend, I was in exactly the same boat last year. It was hard getting excited for the holiday knowing what was awaiting us. {{{HUG}}}
ReplyDeleteKnow that I am praying for you!!!
I am that mom that feeds her kid whatever just so he will eat something. LOL!!! It is hard having a picky eater but when you have a picky heart child it makes it even worse. They have to eat something. All you can do is do what you can and get them to eat whatever. Every little bit counts!
Let me know if you need to chat. Always here!!
I'm so glad you got a date so quickly! I know how you feel about the deductible business. We felt bad having that be a factor for when we wanted to schedule Aly's last surgery but it is just reality. I had to laugh about the cooking- I always swore I wouldn't be a "short order cook" mom either. But I will make 3 or 4 different meals if it gets her to eat. :) Glad to hear he's doing well and will be keeping you in our prayers that he stays a healthy little boy through the holidays.
ReplyDeleteI will be keeping your family in my prayers. Enjoy your Christmas holiday as much as you can because you will be busy for the New Year.
ReplyDelete