Last night was a LONG night. Liam was up pretty much round the clock. He had cycles where ge would flail around, kicking his legs and yelling for about an hour then would pass out and sleep for about 30-45 minutes before waking up and starting over again. He never seemed to be in any pain, but more just uncomfortable and seemed to have a LOT of energy....but he never slept longer than an hour at a time.
Needless to say, I gave up on sleep last night and resorted to eating a bag of cookies and a bottle of soda to stay up with him. Because they had not yet taken his chest tube out, we had to be careful when he was kicking around that he didn't accidentally pull it out. So I was bedside most of the night.
His chest tube came out this morning. He really is doing great and moving along very fast for recovery. Today they will work on feeding and oxygen weaning. Right now he is getting his formula 125 ml per gtube every 3 hours and for the oxygen he is down to 5 liters at 45% concentration. We have not started feeding by mouth yet. They are having a nutritionist and speech therapist come by to talk to us about feeding, which seems to be pretty routine for us to have with any hospital stay.
I'm going home for a bit to take a nap while Dustin and my mom take over. My mom just text me that he is sound asleep now...thank goodness!!
Ahhh, yes. I survived on the coke and snickers in the vending machine outside the pcicu. I'm glad the chest tube is out! That always makes things better! Still Praying!
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